The fund behind the effort
SPIRIT (Scar Physiology, Research, and treatment Fund) has been designed to raise funds for scar treatment and research.
The mission of the program is to advance the knowledge of how scars develop over time and determine what interventions will alter scar development to minimize the undesired effects of scar development and its associated pain.
The value of this research is in the hope that every survivor can return to a normal productive life.
The purpose of the donation is to research techniques that will allow health care providers to influence scar development in a way that allows more survivors to return to a productive life.
The funds will be used exclusively to advance knowledge of scar development and maturation over time and to make treatment options available in a research setting, determining what interventions will alter the scarring process and to minimize the undesired effects of scar development and its associated pain.
Principals involved in the Scar Research Fund have personal stories themselves.
Matt Ferdock, CEO of DataCeutics, discusses his personal connection to scar research and the SPIRIT foundation.
Sigrid Blome-Eberwein, MD.
Sigrid Blome-Eberwein, MD is a burn surgeon and researcher at LeHigh Valley Health Network (LVHN) Regional Burn Center. The LVHN Regional Burn Center is one of the busiest burn centers in North America, receiving over 900 admissions per year.
SCARS RUn DEEP
SCAR RESEARCH & EDUCATION
OUR FOCUS AREAS OF EDUCATION
Burns sustained from accidents and military injuries are visible. Individuals suffer from itching, pain, tightness, color inconsistency, disability with occupational, financial and social consequences, and stigmatizing, to mention a few. Laser treatment has shown to minimize most of these symptoms. Laser treatment should be standardized and made available to all.
On November 11th, 2006, Bill was spending time in his camper doing chores; multi-tasking like many do. Having left his camper for a few minutes forgetting the stove was still on. When he returned he saw heavy smoke in/around the unit. He entered to get the fire extinguisher which didn't help very much because the propane tank was still on. The flames overtook Bill. What Bill remembers after that is a helicopter landing near him.
Years later now, Bill reflects on the treatments available to aide in his ongoing recovery. Most significant scarring is on his head and reconstructed hands. Treatments included compression suits, home care and a series of 20-30 minute laser treatments which Bill says are so helpful with the itching and scar reduction. Some scars actually disappeared!
March 28th, 2010 at 4 am. Leo remembers it was Palm Sunday. He was an electrician called out to do an underground job to restore power in his town. He had to climb 10 feet down into a 8 x 10 vault. He was just finishing up having made the final changes needed to a 2,000 volt primary switch. When Leo took the last step to close the switch, there was a malfunction.
The switch blew up. Leo needed to get out of there but a big problem- he was fully engulfed in fire. With his partner at the top, Leo managed to climb up the vault. Luckily, a fire department was not too far and they were there along with ambulance to bring him in to the hospital burn center.
After a total of 8 months of surgeries and special care, Leo lives with constant pain along with tingling in his legs-- like pins and needles. The pain comes mostly from his legs and the scars on his face and upper arms where his utility gloves did not protect him. Leo's injuries were from the fire as well as the heat. The combination affected bones in his legs, so much so that there was discussion to remove his legs beneath his knees. Pain Management is a constant thought for Leo on two fronts. The nerve pain in his bones caused by the heat is one focus area and the other pain is from the scars. Through the use of lasers starting in 2014, Leo reports that the lasers have given him 100% freedom from the pain.
The treatment began with feeling loosening of the skin on his face, great results with the red and rough texture of the skin so much so that he almost feels like it did before the explosion. He constantly talks to other scar patients about his success with lasers because many do not have access or knowledge of their benefits.
It was 1992 and at the time, Maurice was 11 years old. A young boy's interest in matches created an incident that him with 2nd degree burns.
He remembers his mom racing to the emergency room in their small hometown. Fifty-five percent of his body had 2nd degree burns. His recovery began with a 5 month stay in the hospital.
Various treatments and hospital visits became a routine for Maurice. Over the last 20 years, he worked with pressure garments, surgeries and ointments that improved his scars but did not take away the pain resulting from his injuries and no flexibility. However, in January 2014, Maurice was introduced to laser treatment. He likes lasers best because the procedure is less invasive and can be done as an outpatient. Scarred tissue area is softened to increase his flexibility. In particular, Maurice's ankle that once was so painful has become receptive to the laser. He is feeling better after a number of laser treatments and is at ease when walking.
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Our breakthrough scar research
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More About Us
The Burn Prevention Network was incorporated in 1987 to provide prevention and fire safety education to and advocacy for those at greatest risk of burn injuries. In addressing this mission, we serve as a connecting point to those who are charged with fire suppression; triage and transport of burn victims; regional burn critical care; public safety professionals; professional educators; and the general public.
We offer a wide variety of targeted fire safety and burn prevention programs, media awareness alerts, legislative advocacy, and support of burn survivors. We are affiliated with the Burn Prevention Network.